Phaware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical professionals, phaware is dedicated to elevating their mission by making the public, news media, donors and investors #phaware of pulmonary hypertension.
The podcast series "I'm aware that I'm rare" is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Click on each thumbnail below to listen to the the 2023 Canadian podcasts from the "I'm aware that I'm rare" series:
Canadian pulmonary hypertension and scleroderma patient, Jane Macleod is a retired RN. She discusses reasons for her delayed diagnosis, the importance of pulmonary rehab, and the challenges of living a her new normal.
Canadian pulmonary hypertension patient, Vanda McLean was forced into early retirement due to her diagnosis. She discusses how she navigates depression, the importance of support and how she faces an uncertain future.
Canadian pulmonary hypertension patient, Kaitlyn Salonga discusses the impact PH has had on her job, her relationship and her mental wellbeing.
PHA Canada Patient Ambassador, Jane Sernoskie discusses her pulmonary hypertension diagnosis and becoming a mom through surrogacy.
Long-term Canadian pulmonary hypertension and lupus survivor, Jas James discusses survivor’s guilt and the importance of both emotional and physical support from friends, family and fellow patients.
Canadian pulmonary hypertension patient, Susan Cosenzo discusses her PH diagnosis, the struggles of being a single mom living in government housing and how she overcame alcohol addiction.
Canadian Pediatric PH Care Partner, Kristine Ritchie, discusses her son Brendan’s 10 plus year journey with pulmonary hypertension, the importance of self-care and the impact PH has on her entire family.
PHA Canada Ambassador and pulmonary arterial hypertension patient, Brin Marks, discusses her road to diagnosis, her strategies for staying positive and why she wants to be a voice for change for pediatric PH patients everywhere.
PHA Canada Board Director, Sanjay Mehta, MD, on 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9–10 in Ottawa, ON and what lies ahead for the future.
Pulmonary Hypertension patient and PHA Canada former Board Chair, Nicole Dempsey, celebrates 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9–10 in Ottawa, ON.