Canadian PH Community Survey

In 2013, the Pulmonary Hypertension Association of Canada’s Burden of Illness Survey was carried out. The resulting report has been a crucial tool for educating decision-makers on the complex needs faced by families affected by PH and has been a powerful advocacy tool for many years. 

To continue our mission of improving the lives of patients and caregivers, we are conducting a follow-up PH community survey to measure changes in how people are impacted by a PH diagnosis and to discover new insights. The information you provide will help measure the physical, social, financial, emotional, and psychological impacts faced by the Canadian PH community, including both people living with PH and their caregivers. Health care providers, along with researchers who study pulmonary hypertension, are also invited to participate.

We need your input to understand how we can work together to better meet the needs of the PH community.

Surveys from the list below:

PATIENTS (Closed) : "I have received a clinical diagnosis of pulmonary hypertension (WHO Groups 1-5 and including people who may no longer have PH)." 

CAREGIVERS (Closed): "I care for a person living with pulmonary hypertension without the expectation of compensation (caregivers may or may not live with their care partner)." 

HEALTH CARE PROVIDERS/RESEARCHERS (Closed): "I am a PH treating physician, nurse, or allied health care professional (e.g. pharmacist, respiratory therapist, etc.) who provides direct care to PH patients (primary care physicians/family doctors not included) or I am a researcher who studies pulmonary hypertension, but who does not provide direct care to PH patients." 

This survey was intended for the Canadian PH community. To participate you must be located in Canada. 

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