Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
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Carolyn Mathur, Patient
Oct 25, 20232 min read
Getting the Most of Each Day
I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...
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Lea George, Patient
Oct 24, 20235 min read
A testament to the strength and resilience of the human spirit
In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...
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Marion Roth, Patient
Aug 17, 20233 min read
Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
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Jeannette MacKeen, Patient
Jun 28, 20233 min read
One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
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PHA Canada
Jun 28, 20231 min read
Canada Disability Benefit Act: Advancing Financial Independence for Individuals with Disabilities
Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....
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Nicole Dempsey, Patient
Jun 4, 20231 min read
Patients at the Boardroom Table: Dr. Sanjay Mehta Interviews Retiring Board Chair Nicole Dempsey
This is a big year, marking 15 years of inspiration with PHA Canada. This week we are honoured to get to celebrate this milestone in...
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Ed Rathonyi, Caregiver
May 30, 20232 min read
Adding My Voice as a Parent Caregiver to PHA Canada’s Board of Directors
I applied to join the PHA Canada Board of Directors in 2018 because I wanted to give back to the PH community and contribute towards...
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Sonya Collins, Patient
May 18, 20232 min read
Sonya: Twenty Years and Counting…
Twenty years ago, I first heard the words pulmonary hypertension. An emergency CT scan sent me to the hospital. I was in congestive heart...
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Sharon Proudfoot, Patient
May 15, 20232 min read
Born from a Vision: Why I Joined the Other Founders to Start PHA Canada.
15 years. Wow! Has it been that long since the small group of us got together with a vision of starting a national organization in...
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Emily, Patient
May 2, 20232 min read
Patient Voice: Emily's story
Emily's story is featured by Patient Voice * “I was working as a litigator in Toronto when I was diagnosed with chronic thromboembolic...
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Members of the Death Doula Ontario Network
Feb 26, 20233 min read
End-Of-Life Doulas
There is a rapidly growing end-of-life or death doula movement across Canada. Over the last five years, there has been a significant...
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Stephen Winter, Patient
Feb 20, 20232 min read
My CTEPH Diagnosis
Greetings. My name is Stephen Winter, and I’m from Oakville, Ontario. I want to share my story about chronic thromboembolic pulmonary...
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Nancy Lewis, Patient
Nov 23, 20224 min read
My Journey to Chronic Illness
My journey to chronic illness has been a long one. My official diagnosis came in 2007, but I’d had signs and symptoms for quite a long...
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Jas James, Patient, Cobble Hill, BC
Nov 20, 20221 min read
Jas' Life In Purple: 21 years since being diagnosed with PH
The 21st anniversary of my PH diagnosis came, and I had to pinch myself. I started thinking about all the things that happened on the...
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Vanda McLean, Patient
Oct 26, 20222 min read
Vanda's Travel Blog: Part two
We have now returned from our trip west, unloaded the truck and now trying to relax. That isn’t about to happen with my aging parents and...
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Vanda McLean, Patient
Oct 23, 20223 min read
Vanda's Travel Blog: Part One
Summer 2022, and things are opening up after being shut down by the COVID pandemic. Although COVID is certainly not over, more people...
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Deb McCoy, Patient
Aug 2, 20222 min read
The Canada Disability Benefit and PH
The Canada Disability Benefit (CDB) was first introduced as Bill C-35, and was originally tabled in June, 2021. Due to the 2021 federal...
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Esther, Patient
Jul 12, 20222 min read
Patient Voice: Esther's story
Esther's story is featured by Patient Voice * “Since I moved to Canada from Trinidad and Tobago, I’ve always been on the go — working,...
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Jessica Marks-Cullum, Caregiver
Jun 27, 20223 min read
My PHighter is Graduating!
Being the mom of an ambitious, artistic dreamer has been a fun journey. From a very young age, Brinley always said, “mom, I want to...
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