Traveling with PH: Angele's Family Adventures Across Canada - Blog 4/6
Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...
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Angèle Belliveau, Patient
Jul 183 min read
Traveling with PH: Angele's Family Adventures Across Canada - Blog 3/6
Blog 3/6 - Easter Seals When a family welcomes a child, many will say that "it takes a village"; I would say the same when someone...
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Angèle Belliveau, Patient
Jul 103 min read
Traveling with PH: Angele's Family Adventures Across Canada - Blog 2/6
Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...
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Angèle Belliveau, Patient
Jul 21 min read
Traveling with PH: Angele's Family Adventures Across Canada - Blog 1/6
Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. This year we received an opportunity to fulfill...
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Mary Senkiw, Patient, Winnipeg, MB
Jun 192 min read
How Timely Diagnosis Changed My Life
I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....
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PHA Canada
May 243 min read
PHaware Podcasts
Phaware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical...
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Suzanne Martin Wagnell, Patient, Larder Lake, ON
Apr 174 min read
Life's Twists and Turns: My Story of Living with PH for Over 40 Years
Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...
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Selena McAlpine
Mar 72 min read
Make-A-Wish trip to Disney World
Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...
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Jas James, Patient, Cobble Hill, BC
Feb 282 min read
Managing life with multiple rare diseases
Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....
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Isabelle Lynch, Patient, Laval, QC
Feb 284 min read
Living with Scleroderma and Pulmonary Arterial Hypertension: A Journey of Rare Resilience
Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...
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Brin Marks, Patient, Edmonton, AB
Feb 262 min read
Recognizing Black History Month
As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...
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Jennifer Bryson, Patient
Jan 293 min read
Third Time's a Charm: Finding My Footing at Canada’s Rare Disease Conference
I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...
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CTV News / Jo-Anne Mainwood, Patient, Ottawa
Nov 24, 20232 min read
CTV News - Ottawa school teacher living with rare Pulmonary Arterial Hypertension
Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...
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Jane Macleod, Patient
Oct 29, 20233 min read
Jane's Journey: Overcoming PAH and Scleroderma
I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...
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Terri Hamm, Patient
Oct 26, 20232 min read
Living with Hope: My PAH Journey and the Power of Perseverance
My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...
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Ella MacLeod, Patient
Oct 26, 20232 min read
Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
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Carolyn Mathur, Patient
Oct 25, 20232 min read
Getting the Most of Each Day
I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...
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Lea George, Patient
Oct 24, 20235 min read
A testament to the strength and resilience of the human spirit
In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...
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Marion Roth, Patient
Aug 17, 20233 min read
Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
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Jeannette MacKeen, Patient
Jun 28, 20233 min read
One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
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