LIVING WITH PH
Pediatrics
Receiving a diagnosis of pulmonary hypertension (PH) for your child is life-altering.
Once the initial shock of having a child diagnosed with a disease that most have never heard of fades, parents are left with the reality of living with PH. Although significant changes in lifestyle are often necessary to accommodate pulmonary hypertension, most children continue to lead happy and fulfilling lives. Pulmonary hypertension parents continue to raise their families and can find ways to make day-to-day tasks a little easier while caring for their child.
As a parent or family member, the more information you have, the more equipped you will be to advocate for your child in a variety of situations. Explore these resources to learn more about some of the issues and challenges that are unique to children living with pulmonary hypertension and how you can help your family to deal with life with PH.
"Navigating Pulmonary Hypertension" Guide
"Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients" is a completely free resource specifically designed to provide individuals with pulmonary hypertension and their loved ones with guidance, assistance, and optimism in the initial stages following a pulmonary hypertension diagnosis.