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Find Support

Pulmonary hypertension (PH) can be an isolating illness, but you don’t have to face it alone. As a PH patient or caregiver, connecting with others is a great way to gain support from people who understand what it means to live with pulmonary hypertension and can relate to what you’re going through.
 
There are a number of peer-led PH support groups in Canada, taking place in-person, by phone, and online.

PH Buddy

Life during a pandemic can be stressful, especially for people already concerned about their health or the health of a loved one. Staying connected to others in your community — even while practicing social/physical distancing — is an important part of staying well.   

Could you use someone to talk to while “self-isolating” at home?

Do you want to help someone in the PH community feel less alone?

Sign up to become a “PH Buddy”. Buddies will help one another stay safe and socially connected during this uncertain time.

For more information or to sign up, please contact Jamie at jmyrah@phacanada.ca or 1-877-774-2226 ext. 101. 
 

In-person Support Groups

If there is no in-person support group in your area but you would like to speak with someone directly, please contact us at info@phacanada.ca or 1-877-774-2226. We’d be happy to put you in direct contact with a community member or point you in the direction of additional support resources.
  • British Columbia
    Vancouver Island PH Support Group
    This group meets for lunch on the fourth Wednesday of every month at 12:00 p.m. Please make sure to contact one of the support group leaders if you're planning on attending a meeting as the time and place is prone to changes.

    Group Leaders:

    Southern Interior PH Support Group
    This group meets on a casual basis for lunch. New members are welcome to join. Please make sure to contact the support group leader to RSVP as the time and place are prone to changes.

    Group Leader:
  • Manitoba
    Winnipeg PH Support Group
    The group meets on the second Tuesday of every second month. Anyone affected by pulmonary hypertension (including patients, family members, friends, and caregivers) are welcome to join.

    The group offers support to its members, answers questions, and provides advice to newcomers. Please make sure to contact the support group leader to RSVP as the time and place is prone to changes.

    Group Leaders:
  • Ontario
    London PH Support Group
    The group provides support for people affected by PH, including patients, their families, significant others and those in the medical field. The group meets on the second Saturday of the month. Please make sure to contact the support group leader to RSVP as the time and place is prone to changes.

    Group Leaders:

    Ottawa PH Support Group
    The group meets on the third Sunday of every month. Please make sure to contact the support group leaders to RSVP as the time and place is prone to changes.

    Group Leader:
  • Québec
    Fondation hypertension artérielle pulmonaire Québec (Fondation HTAPQ)

    Fondation HTAPQ is a non-profit organization that was registered in November 2006. Since its inception, Fondation HTAPQ has led many fundraising and awareness projects with the goal of supporting patients in Quebec. For more information visit www.htapquebec.ca or email info@htapquebec.ca. 

    Montréal PH Support Group
    This group meets every couple of months. Please make sure to contact the support group leader to RSVP as the time and place is prone to changes.

    Group Leader:
  • Nova Scotia
    Halifax/Dartmouth Support Group
    All are invited to join an informal PH support group that we have recently started in the Halifax/Dartmouth region! We will be meeting approximately once every 4-6 weeks  to enjoy each other's company over breakfast, coffee, or lunch. If you are from away, but coming to the area, you are more than welcome, and with advance notice we could schedule a gathering while you are here. Please contact the group leader, Beth, for details on our next meeting. Everyone welcome!

    Support Group Leader:
    Beth Slaunwhite (bethslaunwhite@hotmail.com)

Telephone Support Groups

PHA Canada hosts a monthly telephone meeting for parents of children with PH on the last Wednesday of most months. The PH Parents Network is led by volunteer parents and is free to attend. For more information or to join the next call, email info@phacanada.ca. 

Online Support Groups

In Canada, where people are spread out and sometimes live in very remote areas, connecting with others affected by PH online can be helpful in acquiring knowledge about the illness and finding peer support. Here is a list of Canadian PH Facebook Groups: