COMMUNITY

Your Stories

The Canadian PH community is made up of many exceptional individuals: patients, caregivers, healthcare providers, researchers, and supporters who individually and collectively refuse to give up in the face of the many challenges brought on by this disease. These are their stories.

Click here if you are interested in sharing your story about your Life In Purple.

Traveling with PH: Angele's Family Adventures Across Canada - Blog 3/6

Blog 3/6 - Easter Seals When a family welcomes a child, many will say that "it takes a village"; I would say the same when someone...

Traveling with PH: Angele's Family Adventures Across Canada - Blog 2/6

Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...

Traveling with PH: Angele's Family Adventures Across Canada - Blog 1/6

Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. This year we received an opportunity to fulfill...

How Timely Diagnosis Changed My Life

I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....

PHaware Podcasts

Phaware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical...

Life's Twists and Turns: My Story of Living with PH for Over 40 Years

Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...

Make-A-Wish trip to Disney World

Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...

Managing life with multiple rare diseases

Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....

Living with Scleroderma and Pulmonary Arterial Hypertension: A Journey of Rare Resilience

Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...