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Led by EURODIS, the international Rare Disease Day Campaign both educates the general public and seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals, and other with an interest in rare diseases.

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1-in-20 People Will Live with a Rare Disease

Despite the fact that 1-in-20 people will live with a rare disease at some point in thier life, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge of rare diseases amongst the general public, while encouraging researchers and decision makers to address the needs of those living with rare diseases.

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Learn more about PH

If you or a loved one has been touched with pulmonary hypertension, you know that lack of awareness is one of our greatest challenges.

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