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Click here to participate in the survey

PH affects people of all ages, genders and demographics, so a truly global response is required. As the only global pulmonary vascular disease charity, the PVRI is perfectly positioned to coordinate this global effort.

The survey consists of three sections, each taking approximately 10 minutes to complete. It can be completed by patients or their caregivers (for patients below 16 years of age, the survey must be completed by a parent or guardian).​ All data from the survey will be anonymised when used in academic publications and presentations.

About PVRI: The Pulmonary Vascular Research Institute (PVRI) is the only membership charity dedicated to global pulmonary vascular disease (PVD. Its mission is to see the disease acknowledged as a major global condition, well understood and properly resourced, in order to improve diagnosis, treatment and care for patients throughout the world. They do this by advocating for pulmonary vascular disease to be well understood and properly resourced, collaborating globally to share and inspire cutting edge research, and educating healthcare professionals to improve diagnosis, treatment and care. The PVRI is a registered charity (no: 1127115) and a private limited company by guarantee (no: 5780068). PVRI’s website address is, and the charity can be found on Facebook, Twitter, and LinkedIn.