Principle Investigator: Dr. Jason Weatherald, University of Alberta
This survey is being conducted by the Pulmonary Hypertension Association of Canada and the Canadian VIGOUR Centre, an academic research organization at the University of Alberta, on behalf of a pharmaceutical company.
The purpose of this study is to learn about how pulmonary arterial hypertension impacts your work and daily living activities. You are invited to participate in this research study if you have pulmonary arterial hypertension.
We want to identify how pulmonary arterial hypertension (PAH) affects your daily life, which may be useful in estimating the benefits of new treatments. This study is an opportunity for you to tell us how PAH affects your daily activities, work productivity, and career opportunities. You will also be asked about your PAH treatments and what other care and support you require because of your PAH.
Click here to participate in this study
DEADLINE: September 30th, 2023
MORE ABOUT THE SURVEY
Benefits: This survey will not provide direct benefit to you immediately. It will give you an opportunity to help research about how pulmonary arterial hypertension affects your daily life, which may be useful in estimating the benefits of new treatments.
Participation: The survey should take you approximately 15 to 20 minutes to complete. You do not have to answer any questions that you do not want to answer. Once you have completed the survey, please choose the “submit” button.
Risks: Answering questions about your pulmonary arterial hypertension in this survey may potentially cause you stress. If you have any concerns after you complete the survey, please contact the researcher.
Confidentiality and Anonymity: The information that you will share will remain strictly confidential and will be used solely for the purposes of this research. The only people who will have access to the research data are the research teams at the Canadian VIGOUR Centre and the Pulmonary Hypertension Association Canada. Results will be published in pooled (aggregate) format in scientific journals, but individual responses will not be published. Anonymity is guaranteed since you are not being asked to provide your name or any personal information.
Data Storage: Electronic copies of the survey will be encrypted and stored on a password-protected computer at the Canadian VIGOUR Centre at the University of Alberta for a minimum of 5 years.
Voluntary Participation: You are under no obligation to participate. Some survey questions require a response to proceed, but for other questions, you can choose not to answer. Should you choose to withdraw midway through the electronic survey, simply close the link to discontinue the survey. Any responses that you provide prior to closing the survey will be saved and can still be used in the analysis. Given the anonymous nature of the survey, once you have submitted your responses, it will no longer be possible to withdraw them from the study.
Information about the Study Results: As the survey is anonymous, results will not be sent to you directly. The overall results will be available on the PHA Canada website (www.phacanada.ca) once the study is completed.
Contact Information: If you have any questions or require more information about the study itself, you may contact the researcher at firstname.lastname@example.org.
REB ID (Pro00130718)